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Welling Court muralists show off their unique skills in Astoria

See this story at TimesLedger.com.

By Mark Hallum

TimesLedger Newspapers

The Welling Court Mural Project kicked off its ninth year in an ongoing effort to beautify the mostly industrial community centered around 12th Street and 30th Avenue in Astoria.

Each year artists turn out to paint over a mural, usually their own, from the year before and start again with a new image, sometimes politically charged and other times an expression of the artist’s own identity.

Sneha Shrestha traveled from Boston, Mass., with brushes and paint to show her Nepali pride and pay homage to Queens as well.

“I think it’s kind of cool to paint here in this quiet part of New York,” said Shrestha, who came from Nepal in 2006 for college and has been doing murals for about seven years. “My little brother, he’s moving here…it’s a new beginning for him.”

Shrestha’s mural depicted the word “Queens” in English surrounded in a rectangle formation with the word “Imagine” in Nepali lettering. While many muralists are graffiti artists and use spray paint, Shrestha finds using brushes allows her to accentuate the beauty of Nepali lettering, which is at heart of her artistic style.

Joel Bergner teamed up with two other artists from Brooklyn, Chris Soria and Marc Evan, to create one of the larger murals, which features a baby floating through space, reaching with one arm out to a lion and surrounded by glyph-like designs.

“The three of us have all had babies in the past nine months, and so we wanted to do something alluding to children,” Bergner said, explaining how the mural had a sci-fi theme compared to previous projects they have worked on, such as underwater worlds and dancers on land.

Other murals featured Parkland high school shooting survivors, now themselves activists, and one wall from last year depicting President Donald Trump as female with a queen’s crown has been adjusted to have an alien’s face instead.

The Welling Court Mural Project has been underway since 2009, when community members sought help beautifying the pocket in Astoria.

Bushwick gallery Ad Hoc Art was asked to assist in the effort and came up with a plan headed by the founder of the gallery, Garrison Buxton.

The first mural went up in December of that year and came back with a bang, followed by 40 murals, in May 2010.

All forms of media got into the act, as Sold Magazine recorded episodes of its podcast in the middle of it all and spoke with well-known muralist Michel Velt.

Reach reporter Mark Hallum by e-mail at mhallum@cnglocal.com or by phone at (718) 260–4564.

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Source: Times Ledger

Holliswood resident celebrates her 101st birthday

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By Naeisha Rose

TimesLedger Newspapers

Centers Health Care, a rehabilitation and nursing home company with branches across the Northeast does not stereotypically host Bingo nights and leave their elderly residents to watch television throughout the day. Instead its recreational staff plans visits with mini-horses, dance events, Cinco de Mayo celebrations and birthday parties for its centenarians, according to spokesman Jeffrey Jacomowitz.

To mark the 101st birthday of nursing home resident Marcelle Legrand June 6, the staff and patients at the Holliswood branch of Centers, located at 195-22 Woodhull Ave. in Hollis, came out to help her commemorate the special occasion.

In attendance was her son George Legrand, 73, an engineer who lives in Rockland County.

“I am elated,” said Legrand. “I hope I inherited her genes.”

The elder Legrand was born in the bay city of Gonaïves, Haiti, in 1917, according to Latricia Charles, a recreation aide who speaks Creole.

Legrand was the oldest of three siblings and was the matriarch of her family, according to her son and half-brother Jean Robert, 60.

Robert’s mother passed away when he was young and it was Legrand who took care of him, according the Elmont resident.

“She’s not only my sister, but for me she was also my mother,” said Robert. “She is a good person and she has a good heart…she was the head of the family…and she was in charge.”

In Haiti, Legrand was a primary school teacher of children ranging from 7 to 9, according to her son. After having three kids, she decided to work as a seamstress and make custom dresses from home in order to spend more time with them.

Later she married Wilford Delsoin, a broker, but due to political persecution he faced from the regime of former Haitian President François “Papa Doc” Duvalier, the couple left their home country in 1966.

“When she left, she went to Chicago,” said Robert.

Delsoin became a manager at a belt factory and because of Legrand’s limited understanding of English she worked at a factory for Tootsie Rolls, the chocolate taffy-like candy company, according to her son.

In 1976, Legrand and her husband moved back to Haiti because of health issues, but once she learned that they both needed a quadruple bypass as a result of heart problems they went to Florida in 1978, according to her son.

While in Florida she had the surgery to clear her arteries, but her husband, who was in his early 80s did not and he died in the early 1980s.

In 2001, she moved to Hollis and lived with her niece, Marie Legrand, but the following year came with bad news: her sister Francia Legrand, a reseller of wholesale goods, died at 75, according to her son.

Despite the losses she faced, Legrand still enjoys life and at her birthday she smiled and bopped her head to Tropicana, the popular music of her home country in the 1950s.

“She was devoted to everyone, not just her son and daughter,” said Robert. “She put herself out there for everybody.”

Reach reporter Naeisha Rose by e-mail at nrose@cnglocal.com or by phone at (718) 260–4573.

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Source: Times Ledger

Work on Broadway and 39th Avenue subway stations in Astoria set to begin July 2

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By Bill Parry

TimesLedger Newspapers

Astoria is about to get two of its subway stations back in operation just as two more stations are about to close for extensive repairs and renovations.

MTA New York City Transit announced Friday that extensive structural, safety and functional repairs, renovations and improvements will be done at the Broadway and 39th Avenue N/W stations, with the work scheduled to beginning Monday, July 2. Workers will repair and replace deteriorating station infrastructure such as steel beams and columns, staircases, platforms, open-air canopies and concrete, among other improvements, to ensure the safety, comfort and convenience of customers as well as the reliability of the Astoria Line.

“These outdoor stations have deteriorated after more than a century of snowstorms, rain, sun, wind and daily foot traffic,” NYC Transit President Andy Byford said. “We thank our customers for their patience while we make these repairs and improvements. Once these projects are done, major defects will be fixed and these stations will be in a renewed state for the local community to use for decades to come.”

Work at Broadway and 39th Avenue includes the repair of tracks and platform girders and new concrete slabs will be installed above mezzanines. The stations will also get upgraded power service, new floors and ceilings, brighter and more energy efficient LED lighting and fixtures, digital signage, renovated turnstile areas and countdown clocks and enhanced station entrances. A new street entrance for the Broadway station will be added for better pedestrian access.

The stations will close in both directions after similar repairs and renovations are completed at the 30th Avenue and 36th Avenue N/W stations, which are scheduled to reopen on time June 22. None of these four open-air, elevated stations had undergone repairs like this since they first opened for service in 1917.

NYC Transit staff have conducted extensive community outreach ahead of the July closures, visiting more than 100 businesses over the course of the last several months. Large-scale signage has been posted at the stations since June 1, and Transit officials are working with area businesses to develop a marketing campaign to help drive customers to patronize them. The agency is also assisting with advertisements on train platforms to promote 30th Avenue Restaurant Week coinciding with the reopening of the 30th Avenue and 36th Avenue subway station, which had been closed since October. More than 30 bars and restaurants are expected to participate from Friday, June 22, to July 1.

Business owners and sponsors are asked to contact Franks Arcabascio of the 30th Avenue Business Association at farcabascio@gmail.com for more information.

MTA NYC Transit is in the process of repairing and upgrading all stations on the Astoria N/W Line with work beginning at the Ditmars Boulevard station in April. The station remains open throughout the project, which is scheduled for completion by June 2019. At the Astoria Boulevard station, the entire mezzanine will be demolished and rebuilt to accommodate the installation of four elevators.

Reach reporter Bill Parry by e-mail at bparry@cnglocal.com or by phone at (718) 260–4538.

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Source: Times Ledger

Richmond Hill man found guilty of rape: DA

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By Naeisha Rose

TimesLedger Newspapers

Queens District Attorney Richard Brown announced Monday that Albert Premnauth, 24, was convicted after a week-long trial of rape, criminal sexual act and endangering the welfare of a child at his home in Richmond Hill in February 2016.

The victim, a 14-year-old girl at the time, became entangled with Premnauth after she jokingly posted a nude video of herself on Snapchat to another 14-year-old girl in early 2016, according to the district attorney’s office.

The friend of the victim shared the video with Jacob Marcial, 18, of Kew Gardens, according to the district attorney’s office.

“This case tragically demonstrates how dangerous it is for teenagers to take explicit images or videos of themselves and then to send them to others — even those they consider to be their friends,” said Brown. “The video then ended up in the hands of the 18-year-old male friend, who threatened to post it online if the victim did not have sex with the defendant to pay off his debt.”

Marcial, who was in debt to Premnauth, his alleged marijuana dealer, threatened to use the video to force the 14-year-old victim to have sex with the defendant in order to clear his payment, according to Brown.

Marcial, who pleaded guilty to sex trafficking the victim on Sept. 14, had arranged for the 14-year-old girl to have sex with the defendant, but after reaching Premnauth’s home she told him her age and begged him to give her time to pay off the debt in another way, according to the case presented by the district attorney’s office.

Premnauth refused the victim’s offer and forced her to have sex with him on Feb. 20, 2016, and gave her $100 in cash and a Beats by Dre headphones, which Marcial was to sell and use to pay back the defendant.

After a weeklong jury trial that concluded last Friday, Premnauth was convicted of rape and other charges and faces up to seven years in prison at his sentencing, which was scheduled for July 18 by Acting Supreme Court Justice Peter Vallone Jr., the judge who presided over the case.

Upon Premnauth release from jail he will have to register as a sex offender.

“The defendant, despite the victim’s tears and literally begging not to be raped, was violated by the defendant. A jury weighed all the evidence presented at trial and found the defendant guilty. He will now face serious prison time for his actions,” Brown said.

Marcial was scheduled to be sentenced on July 31 and faces up to 25 years in prison.

Reach reporter Naeisha Rose by e-mail at nrose@cnglocal.com or by phone at (718) 260–4573.

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Source: Times Ledger

‘The Exonerated’ explores the dark side of our criminal justice system

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By Tammy Scileppi

TimesLedger Newspapers

Seems as if Lady Justice was off duty for a while when a surprising number of innocent people got death sentences for crimes they didn’t commit over the past few decades.

While some have been exonerated, thanks to saving graces, like last-minute pardons, or after DNA evidence proved they weren’t involved in those crimes – sometimes after serving 20-plus years in prison – others weren’t so lucky.

An unsettling, hard-hitting documentary play, which just completed its successful ten-show run at Long Island City’s Secret Theatre, “The Exonerated,” which ran for 10 performances from May 31 to June 9 at the Secret Theatre, located at 44-02 23rd St. in Long Island City, recounted the riveting stories of six former death row inmates (played by rising local actors) using their own words, from court transcripts, interviews and letters.

Though these five men and one woman were convicted and sentenced to death for crimes they did not commit, some were nowhere near the scenes of the crimes, while others were connected to the victims by the thinnest of threads. There were also those who claimed they were pressured to falsely admit guilt during grueling police interviews.

Between them, these folks spent over one hundred years on death row before the criminal justice system finally corrected its mistakes and exonerated them, a fact that should scare every ordinary citizen.

The setting of the play was devoid of props, save for six chairs lined up against a stark backdrop: the disturbing image of a vintage electric chair screened on a wall opposite the actors – who would alternately sit facing it or get up to tell mind-boggling tales – the play exposed shocking police and prosecutorial misconduct in each case, which led to the conviction of innocent people.

Issues of race, law enforcement and the death penalty were brought to the fore, but there were occasional moments of humor to lighten things up.

For the play’s intro, you could hear a recording of death row inmates’ names read aloud, over and over, while later on, bursts of violence and a few gunshots enhanced the reality factor.

Featuring an exceptionally strong cast led by director DeMone Seraphin, “The Exonerated” seemed to possess an unmistakable power, one which pulled at your social justice heartstrings while shedding light on a series of serious miscarriages of justice.

If you’ve seen Alfred Hitchcock’s 1956 film “The Wrong Man,” you can understand the devastating effect being wrongly accused of a crime you didn’t commit, can have on the accused and their families.

That’s what Sunny Jacobs, a mother of two, must have felt when she found herself behind bars.

“So, I’ll just give you a moment to reflect,” she saidof her unbearable time in prison. “From 1976 to 1992, just remove that entire chunk from your life, and that’s what happened.”

Perhaps it was her unwavering belief that she would be released (despite the execution of her husband, who was also innocent, for the same crime) that kept her from losing all hope and her sanity.

The audience sat silently, listening to the words of those who emerged from death row… definitely not unscathed, but somehow at peace now that their painful journey was over.

How do you keep the faith in the bleakest of situations when all seems lost? When freedom is stripped away along with your self-respect?

“The wrongful imprisonment and promise of execution of the innocent is a cancer on our culture and our justice system that is very often steeped in racism, classism, and greed,” said Seraphin. “By lifting our voices, sharing our gifts, and telling these stories, it is my hope to add to the fire that demands the reformation of a fractured system and reparations to the countless lives and families that have been devastated by the practice. We gather not just to do a play, but to be the conduits of social justice and liberation.”

Created by Jessica Blank and Erik Jensen, the play was first performed in Los Angeles in April 2002, and was directed by the playwrights. It premiered in New York City in October of that year, at 45 Bleecker Theater, and was first published in 2004.

While crying out for social justice and prison reform, Delbert Tibbs, a black radical and poet from Chicago, spoke of his death row experience with anger and bitterness.

Then there was Texan Kerry Max Cook, a man whom “Texas killed a thousand times, and just keeps on doing it” — in his nightmares — was convicted of murdering a young woman even though she was found with another man’s hair grasped in her fist.

“I finally volunteered to give what they call a ‘vision statement’ — a hypothetical account of what I would have done if I had killed my parents,” recalled former inmate Gary Gauger, who was told during 12 hours of nonstop questioning by police that it could help jog memories of where he was on the day of the murders.

Exhausted, Gauger agreed to give the statement, all the while denying his involvement. That version was then used by the police as his confession. Two other men were found guilty of the crime, years later.

That scenario should sound familiar to true crime devotees.

“I produced this play because it features incredible stories — well told — with incredible actors,” said Richard Mazda, Secret Theatre’s founder and artistic director. “I feel that this is a most relevant play because we still have a justice system that is skewed and distorted. In an era when police brutality has brought about new movements like Black Lives Matter, this play shows us the dehumanizing process that can begin with a wrongful arrest and can lead to a horrendous miscarriage of justice.”

Okay, so you may have guessed that this intense theatrical work wasn’t your feel-good, laugh a minute comedy or fluffy musical. Sometimes, it’s important to switch things up and take in something that’s thought-proving, which leaves a lasting impression on your soul.

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Source: Times Ledger

Sing for Hope brings Broadway to Queens

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By Merle Exit

TimesLedger Newspapers

Paul Raimonda Playground in Astoria served as an ideal location to host Sing for Hope’s seventh annual event, as the park had recently undergone renovations to include a spray shower in the shape of a baby grand piano dedicated to the Steinway and Sons factory located a few blocks away.

As of June 4, 51 artistically painted pianos have popped up across New York City. Of those 51, 11 are located in parks, public spaces and other high traffic outdoor locations of Queens and are available to anyone interested in tickling the ivories through June 24.

After the event, the pianos will get permanent homes in 50 public schools. These brightly colored and patterned pianos were painted by artists from around the world, each instrument featuring its own message.

Broadway shows took part this year with the casts from “Kinky Boots,” “Dear Evan Hansen,” “Wicked” and “The Play That Goes Wrong,” each painting a piano. Paul Raimonda Playground was the recipient of the “The Play That Goes Wrong,” along with the message that just because everything’s going wrong doesn’t mean something beautiful can’t come from it.

For the first time ever, Sing for Hope has teamed up with MINI USA for #DrivingHope, a partnership motivated by their shared passion for bringing creativity to communities. MINI USA is the title sponsor of the Sing for Hope pianos. They have created a one-of-a-kind piano on wheels called the #MINIPiano. This 51st piano has a specially designed and modified MINI Countryman that has been outfitted with a keyboard, sound system, and brightly colored exterior.

“MINI is pleased to partner with Sing for Hope in its important mission, bringing even more music, more art, more spontaneous moments of community to every corner of NYC with our unique mobile #MINIPiano,” said Lee Nadler, the regional marketing manager for MINI USA. “MINI wants to leverage its creativity to enhance city life, and we are excited to amplify the great work that Sing for Hope is doing by expanding the reach of music throughout the five boroughs via the #MINIPiano.”

Those interested in stopping by can schedule time at any one of the pianos in New York City and perhaps bring other instruments, or even singers, to accompany them.

Paul Raimonda Playground is located at 20th Avenue between 47th Street and 48th Street and is open every day from 9 a.m. to 8 p.m. Other locations that will house pianos include: Astoria Park (located at 21st Street near the tennis courts; open every day from 9 a.m. to 7 p.m.); Flushing Town Hall (located at 137-35 Northern Blvd.; open every day from 12 p.m. to 5 p.m.); Gantry Plaza State Park (located at 4-09 47th Rd.; open every day from 9 a.m. to 9 p.m.); Jamaica Hospital (located at 8900 Van Wyck Expressway; open every day from 9 a.m. to 8 p.m.); Kaufman Arts District (located at 34-12 36th St.; open every day from 9 a.m. to 8 p.m.); Queens County Farm Museum, (located at 73-50 Little Neck Parkway; open every day from 10 a.m. to 5 p.m.); Rockaway Park (located at the Boardwalk at 86th Street; open every day from 9 a.m. to 9 p.m.); Roy Wilkins Recreation Center (located at 177-01 Baisley Blvd.; open every day from 9 a.m. to 9 p.m.); Unisphere at Flushing Meadows Corona Park (open every day from 10 a.m. to 6 p.m.); and Yellowstone Park (located at 68th Avenue and Yellowstone Boulevard; open every day from 9 a.m. to 9 p.m.).

Later this year, the 2018 Sing for Hope pianos will be placed in permanent homes at Sing for Hope’s “Citizen Artist Schools,” including these schools Queens: PS 64 (82-01 101st Ave. in Ozone Park); PS197 (825 Hicksville Road in Far Rockaway); IS 10 (45-11 31st Ave. in Long Island City); PS 175Q (64-35 102nd St. in Rego Park); PS 181 (148-15 230th St. in Springfield Gardens); Flushing High School (35-01 Union St. in Flushing); and Louis Armstrong Middle School (32-02 Junction Blvd. in East Elmhurst).

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Source: Times Ledger

Water and Light plant shop opens its doors in Ridgewood

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By Carlotta Mohamed

TimesLedger Newspapers

Roy Paar and Milana Naumenko turned their love of plants into a passion project, opening the Water and Light plant shop in Ridgewood June 2. They welcomed the community with champagne and cupcakes.

Water and Light — located at 788 Cypress Ave. — is a small plant shop open Fridays to Sundays from 11 a.m. to 7 p.m. with a variety of houseplants to view and choose from in the 350-square-foot space. On opening day, Paar and Naumenko sold 10 plants within two hours and a total of 47 plants by the end of the day.

Throughout the green botanical showroom, big and small plants such as succulents, monsteras, fiddle leaf fig trees, cacti, and philodendron selloums range in price from $8 to $200.

“A lot of them are tropical plants,” said Naumenko. “We wanted to make sure people see plants as an individual piece. For me, I love plants and in a lot of stores I go to there are beautiful plants, but they’re mixed together. This type of display we have is more about the individual plant and it’s nice to see.”

Paar and Naumenko partner with local and regional nurseries in New York City, Florida, and California to bring quality plants to their customers. After receiving a certificate from the New York State Department of Agriculture, they are able to take care of a plant in their apartment until it’s ready to be placed in the shop for sale.

Customers can also text Paar and Naumenko about a certain plant they would like to purchase, and their order is placed until they are ready to pick it up. They are currently working on launching an e-commerce shop with domesticated shipping to destinations within the United States to help build online sales, and incorporate technology with the plant business.

“There are sensors that tell you when your plant is dry or if it gets too much sun, and we want to have something like that to sell with the plant,” said Paar. “We also eventually want to develop a mobile app that can tell you when to water your plants.”

Everyone’s plants need consistent care and Paar and Naumenko provide extra services to help customers if they have any questions about their purchase. In addition, their Instagram account — @addwaterandlight — includes one post each day about a particular plant and how to care for it.

“I feel like a lot of people shy away from plants because they probably don’t know how to care for it,” said Naumenko. “We can monitor when a plant needs fertilizer, and that’s a way to keep in touch with the customers, and we’ll be there to take care of the plants.”

Paar said they’ve invested a total of $15,000 to begin their business and hopefully it blossoms into something bigger.

“We’re putting a lot of time, money and effort into this,” said Paar. “I’ve tried to start a handful of companies but never really done it quite like this. We have a ton of ideas and cool new stuff in the works coming soon.”

The Water and Light plant shop can be found on Instagram, Facebook and Pinterest.

Paar and Naumenko are currently looking for an intern to assist with sales from July 6 to Sept. 15 during business hours from 11 a.m. to 7 p.m. on Fridays, Saturdays and Sundays, while they begin the next step of creating their online e-commerce shop.

Reach reporter Carlotta Mohamed by e-mail at cmohamed@cnglocal.com or by phone at (718) 260–4526.

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Source: Times Ledger

Photos: A behind the scenes look at renovated Madelaine Chocolate Company

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TimesLedger Newspapers

The origin behind the naming of the Madelaine Chocolate Company has been lost in time. The family who started the company in Rockaway Beach after World War II didn’t have a Madelaine in the fold. It may have been a once-popular movie actress or just something French that kind sounded classy.

But the name has taken on a new meaning. The company has shown incredible resiliency after Hurricane Sandy, when the storm virtually wiped out the factory that covered two full blocks at the foot of the Cross Bay Veterans Memorial Bridge and had employed more than 400 people and produced million of pounds of chocolate for more than 60 years.

With the help of loans and grants from the city, state and the federal Small Business Administration, the plant is back up and running at near capacity. It took nearly six years and $20 million, but Madelaine is back.

Officials opened its kitchen doors to the press this week to show off the rebuilt facility. Here’s a behind the scenes look at the historic factory.

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Source: Times Ledger

Letter to the Editor: Community Board 2 votes against bike lane proposal

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By William Kregler

TimesLedger Newspapers

Bravo to Community Board 2 in Queens for voting down the ill-conceived protected bike lane proposal.

The rhetoric of the bicycle fanatics in attempting to stir emotions over logic on the issue was appalling. They used the death of bicyclist Gelacio Reyes, who was killed in the intersection of 43rd Avenue and 39th Street at 2:53 a.m. on April 1, 2017, as justification for the expensive project without regards to its negative impact on the community.

Forgetting all the other factors in this case (violation of traffic signals, alcohol, legal status, unlicensed operation, disabling of interlock devices, revoked licenses, etc.) the one undisputed fact is that bike lanes would not have prevented this tragic event from occurring because it happened in the intersection of cross streets. Yet, the bicycle fanatics contended that if one life is saved, then it’s money well spent. That is an opinion of a few and not the consensus of the majority.

Mayor Bill de Blasio will move forward with the project and totally ignore the board’s decision and the concerns of the communities involved. Furthermore, let’s not forget the actions of City Councilman Jimmy Van Bramer. Van Bramer was so passionate about the idea that he held a press conference at the location of Mr. Reyes’ death, demanding the NYPD move quickly in their investigation — which they did with the arrest of Christian Guiracocha — and calling upon the Department of Transportation to install protected bike lanes on 43rd Avenue. He also inserted a family member on the board of Transportation Alternatives. He then hid in the shadows while ignoring the rally held prior to the community board meeting and did not attend to give his position or support for the proposal he demanded.

If this issue is so important, then make it a proposal for the next election and live with the results. That is the democratic way of doing things. Yet the sad truth is that we are ruled by a dictator for a mayor and the sheepish local officials that support him.

William Kregler

Woodside

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Source: Times Ledger

Former Flushing resident asks for help to save her son’s life

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By Carlotta Mohamed

TimesLedger Newspapers

There isn’t anything Lisa Largue wouldn’t do for her twin teenage boys — especially since one of them is in dire need of a kidney donor.

Largue is the mother of twins Matthew and Miguel Bustamante, 18, who will celebrate their 19th birthday June 22. The greatest gift anyone could give is a kidney for Matthew, who was diagnosed with Chronic Kidney Disease — the gradual loss of kidney function — in June 2017, and is now in end-stage renal failure. In order to survive, Matthew will need to do dialysis, or a kidney transplant from an A or O (positive or negative) living altruistic donor.

Largue, 45, who used to live in Flushing, now resides in Orlando, Fla., where Matthew is receiving treatment at the Florida Hospital in Orlando for his condition. In February, she created a GoFundMe page to raise $25,000 for Matthew’s medical expenses and to send his twin brother Miguel to college. So far, Largue has raised $14,348 from 200 donors in the past three months. “I’ve written to anyone and everywhere,” said Largue. “It’s surreal from a mom’s perspective because it’s your child. I would think most mothers unconditionally love their kids and would do anything, and when you can’t, it’s not a good feeling.”

Unfortunately, Largue is unable to help Matthew since she was diagnosed with kidney disease and is in the process of seeing a doctor and having a biopsy done. Other family members tested have been ruled out due to an unsuccessful match, except for Matthew’s brother. However, Miguel is unable to donate given his age and doctors don’t want to put him at risk if kidney disease is genetic, Largue said.

Matthew, a typical 18-year-old, with an outgoing personality who loves to play basketball, has an online blog where he posts about CKD and his search for an altruistic donor.

“I can’t do much anymore,” Matthew said on his blogspot. “My disease makes me tired and weak, but a transplanted kidney could cure all of that. A new kidney could save my life. I want to be a filmmaker someday. Hopefully, I will make that happen.”

At 5 feet 9 inches tall and 118 pounds, Matthew has found that his appetite has decreased and he spends the majority of the day sleeping in bed. Aside from kidney disease, he also has allergies, which doesn’t allow him to eat much. He is currently taking three to four different medications daily, according to Largue. He also uses an inhaler for Esophagitis, which causes painful, difficult swallowing and chest pain.

“He was beyond energetic, into sports and active,” said Largue. “This is the kid that was always playing sports, and now he doesn’t do anything. Some weeks he’ll eat good and snack in-between, other weeks he won’t eat and I’ll have to nag him.”

Living in Florida and unemployed, Largue is depending on the GoFundMe donations to help Matthew get the care and kidney transplant he desperately needs.

Since she left Rockland County, where she used to live and work as a medical assistant for pediatrics at the Boston Children’s Hospital, Largue has been receiving temporary continuation health coverage under COBRA — the Consolidated Omnibus Budget Reconciliation Act. The federal law gives workers and their families who lose their health benefits, the right to choose to continue group health benefits provided by their group health plan for limited periods of time under certain circumstances: voluntary or involuntary job loss, reduction in the hours worked, transition between jobs, death, divorce, and other life events.

Largue is currently paying $2,400.45 a month for medical expenses, until Matthew is qualified to receive to Medicare until the first day of the fourth month of dialysis. She said if Matthew has the kidney transplant surgery, Medicare will pick up 80 percent of the cost, but might not provide coverage for medications that she will have to pay out-of-pocket post-transplant.

In addition, Largue had to pay for donor expenses — medical and surgical procedures, and travel and lodging. If Matthew has to do dialysis in the comfort of his home at night, the cost of nurses visiting their home, a trainer, numerous medications, and certain types of foods will come with a hefty price as well, Largue said.

She is currently searching for a job with insurance, but is afraid to leave Matthew since he is not doing well.

“This is where it gets complicated,” said Largue. “I just wish I could’ve given it to him. I have to keep it together for him and my other son, and hopefully we find a match.”

Reach reporter Carlotta Mohamed by e-mail at cmohamed@cnglocal.com or by phone at (718) 260–4526.

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Source: Times Ledger